The Aotearoa New Zealand Rare Disorders Strategy sets out the direction for the health system to better support people and their whānau living with rare disorders. It provides a framework and long-term priorities that will guide health entities in improving health and wellbeing outcomes for people and their whānau with rare disorders over the decade 2024 to 2034.
We have heard from people and their whānau living with rare disorders that they often face significant barriers to getting timely, effective and equitable health care. Practitioners may find it difficult to diagnose rare disorders or may not know how to support their health and wellbeing.
The strategy will improve system responsiveness and support for people and their whānau living with rare disorders, as well as service providers who often face difficulties meeting patient needs.
Our vision is for all people and their whanau living with rare disorders to share in pae ora (healthy futures) and live fulfilling lives.