Aotearoa New Zealand Rare Disorders Strategy

25 Jul 2024

The Aotearoa New Zealand Rare Disorders Strategy sets out the direction for the health system to better support people and their whānau living with rare disorders. It provides a framework and long-term priorities that will guide health entities in improving health and wellbeing outcomes for people and their whānau with rare disorders over the decade 2024 to 2034.

We have heard from people and their whānau living with rare disorders that they often face significant barriers to getting timely, effective and equitable health care. Practitioners may find it difficult to diagnose rare disorders or may not know how to support their health and wellbeing.

The strategy will improve system responsiveness and support for people and their whānau living with rare disorders, as well as service providers who often face difficulties meeting patient needs.

Our vision is for all people and their whanau living with rare disorders to share in pae ora (healthy futures) and live fulfilling lives.

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Key issues

HEALTH SERVICES AND SYSTEMS

Covering developments in the provision, funding and organisation of health care services.

EQUITY

Exploring the impacts of the health system on minorities within the population, notably including Māori, Pacifica, Asians and LGBTQI.

DRUGS, DEVICE AND DIAGNOSTICS

Covering prescription medicines and medical devices.

PUBLIC HEALTH

Focusing on efforts to promote health and prevent disease through social and economic interventions.

DIGITAL HEALTH

Exploring the potential digital transformation to provide a more connected and accessible health system.

TE TIRITI

Monitoring how the health reforms and the performance of the health sector uphold Te Tiriti obligations.